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AMIA Spring
Congress Bridging
the Digital Divide: Informatics and Vulnerable Populations Report from
Breakout Groups Friday,
June 5, 2003 Claire Twose Congress
Web site: http://www.amia.org/meetings/spring/current/info.html
Issues and Trends Group
Vision
All people in the US regardless of literacy, culture, function or socioeconomic status, can effectively improve their health using e-heath interventions
Barriers
Policy
·
Encourage payment/ reimbursement for
health professionals for appropriate health education and E-Health
tool utilization
·
Encourage public / private partnerships
·
Technology transfer
·
Examine opportunities & issues
for entrepreneurship
·
Government support for commercialization
potential
·
Make E-Health projects adapt to issues
of diverse populations
Funding
Research priorities
·
Diffusion, Dissemination, Marketing
o
E.g. Intergenerational and cultural
transfer of attitudes and values
·
Demonstrating the economic value of
e-health interventions designed for diverse populations.
·
Respond to and incorporate user and
community defined needs, priorities, and preferences
Education and Training
Overarching recommendations
Strategies Group
Mission
Three Major Strategic Goals
Strategies
o
Support mechanisms to extend information
access to all populations
§
for example: vouchers, sliding scale
ISP, etc.
o
Sustained funding
·
Content/Access/Utilization
o
Define needs of the underserved populations
o
Identify & include all stakeholders
in development & implementation
§
3rd party payers, health care workers,
patients & families, community leaders, librarians, educators,
leaders of faith-based organizations, technology vendors, etc.
o
Target multiple audiences (varying
ages, cultural backgrounds)
o
Funding agency support for outcomes
research on evidence based health information interventions
o
Conduct formative and summative evaluations
o
Reimburse provision of health information
on-line\
·
Development
o Better geographic coordination of research o Engage individuals, community leaders, and social networks within communities o Engage libraries and schools (literacy programs) o Recruit corporate partners o Learn from successful business models o Develop informatics training curricula to include interdisciplinary community-based research strategies AMIA’s role in addressing underserved populations
·
Showcase effective
tailored interventions
o
Mini-poster sessions,
tracks, panels
o
JAMIA special issue
o
Summary of research
projects.
§
Web based database
amia.org
Evaluation Group Ideal:
Challenges to Achieving the Idea were Grouped into Three Areas:Community
Scientific
Administrative (Taken from breakout session notes, not the summary)
Recommendations (These recommendations have been taken from my breakout session notes):
Education/Training
Research
Funding
Policy
Dissemination
Ideal
To improve health literacy, health care, public health and health itself by delivering universal, timely access to health information, communication decision support and disease management tools that are evidence-based, culturally sensitive, adaptive, and empowering to the individual
Barriers
Enablers
Strategies
Policies
Funding
Research
Education
Innovation
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